What Lupus looks like to me (Video)

This is What Lupus Looks Like to Me !

I get asked this question a lot and thought that I would just do a video.

https://youtu.be/uazsr02J57Y

This is real emotions and how I felt today I am still in my P'J's and just have brushed my teeth and took all my meds.

This is my first time ever posting anything like this .

Please be kind !

Also my kids can be heard in the background Playing .

Leave a comment below and share this if you think it will help someone .

As Always

Stay Strong and Keep Fighting .

Love ya ,

Misty

Comments

Lupus thoughts and Ramblings June 25th

Hey there. I hope you are staying safe and sane in this crazy world. It's a lot to stomach for anyone. I can't go crazy. I already am! Serious question? When do you tell your family that their joking around has become hurtful? It's to the point where I feel like I am in high school again, trying to compete for their love and attention. I am 45 yrs old and feel like I am treated like a child at times. I am told that I am too sensitive and that I take things out of context, that I should just take it, and know they are playing. Every night it's a roast the hell outta mom till she cries or locks herself in the bathroom so no one would see. it's not like anyone would care to be honest. I could cry for hours and no one would even flinch. When did I become invisible, and so small that it doesn't matter if I am even around? I am ignored when I am trying to be a mother, I am ignored when I try to let people know ho...

Let's talk showers

Let's talk showers No, not the kind that falls from the sky when it rains. No, not meteors, but regular showers people take to keep clean. A regular person is in the shower up to 5-10 mins maybe 15 at the most. Well for someone with Lupus, MS and Fibromyalgia it's so much longer. For instance, it took me almost an hour to shower the other day. Why is this you ask? Well, I can barely stand on my own, and do things like lift my hands to shampoo my hair without being so exhausted I have to sit down. So it begins, the clock ticking away. *10 mins gone * sitting down. Once I finally can I stand back up and commence the ritual of the shower but wait, after *10 more mins* I need to take a breath before I pass out (literally) it takes sitting down and breathing slowly to make it not feel like my heart is going to leap out of my chest. I look at my handy dandy Fossil smartwatch and it says my BPM is 140 which I believe. I try to slow down my breathing, a...

Lupus thoughts and Ramblings

I found this from April25th 2019 and somehow it never posted so I thought I would just add it here because I know that a lot of you are struggling this way also. You are not alone at all. I am starting to realize that sometimes even the sweetest kind of person can belittle you and hurt you with their words. I recently had a day where I was told "Try to Keep Up" on the day I was struggling to walk, and in the most pain due to lack of pain medication s. It cut me to my core. I would like to think that I am a good person and kind to everyone I meet. But recently it's been pointed out that people feel like I make whatever is being talked about and turn it back to ME. I don't feel like the world is about me by far, I try to make everything about other people and leave me out of it all. I am not the kind of person that I want to have the spotlight on myself, it makes me uncomfortable because I want to do things right. I know it's crazy being a "Leo" it...

My Not So Normal Life and A Few Other Things.

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