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Showing posts with the label #MS

Lupus thoughts and Ramblings Jul 28th

  I don’t understand why this life is so hard for me? Why when I get sick my body completely shuts down and my insides make me feel like I’m dying. I have always struggled like this, a common cold knocks me out for days, sometimes weeks.  I am still havocked by pain every second of the day and the only way my body can handle this is by sleeping. if I am so lucky. Did I do something so horrible that God is punishing me? Do I still believe in God?  I am failing at being a warrior, a fighter, a mother, and a wife  I feel like my family deserves so much better.  Why is the pain for me so unbelievably hard? why can’t I force my body to do what it needs to feel better? I have tried so hard to get out of bed and move, to be more present in life, to just try. I have willed myself that I can do it, only to be bedridden hours later. My body is a mess inside and out and it’s breaking me down even further.  My heart breaking and I so want to be able to handle it all bu...

Lupus thoughts and Ramblings June 25th

Hey there.  I hope you are staying safe and sane in this crazy world.  It's a lot to stomach for anyone. I can't go crazy.  I already am!        Serious question? When do you tell your family that their joking around has become hurtful?  It's to the point where I feel like I am in high school again, trying to compete for their love and attention. I am 45 yrs old and feel like I am treated like a child at times. I am told that I am too sensitive and that I take things out of context, that I should just take it, and know they are playing.  Every night it's a roast the hell outta mom till she cries or locks herself in the bathroom so no one would see.  it's not like anyone would care to be honest.  I could cry for hours and no one would even flinch.  When did I become invisible, and so small that it doesn't matter if I am even around?  I am ignored when I am trying to be a mother, I am ignored when I try to let people know ho...