My Not So Normal Life and A Few Other Things.

I can hear outside my windows, yelling, laughing, splashing in the pool,  all the kids enjoying the fact there's No School. I see Pictures everywhere on social media, new suntans, beach hair, sandals, tanks, & shorts, Pictures of  Fun Vacations, Not a single Care in the world.  Everyone Soaking up as much sun as they can before Summer is finished. Mayson asked me why I don't go out? why I don't want to watch them swimming? What does summer mean to me? this got me thinking.  What does summer mean to me? The first things to pop out of my mouth were   long sleeves, long pants, sunblock to the 100's, Huge hats, sometimes gloves. Sweatshirts and sweaters.  It's long flares that last for days because I  went outside, for a quick errand without taking the things I need   causing my body aching pain everywhere, Imagine being hit by a bus, That's Me .  I have only one choice but to stay in be...

Being Sick is a chore within itself but also having a degenerating autoimmune disease like Lupus makes life a bit more of a struggle.  I have been trying to be more positive in my day to day routine but honestly, all my body wants to do is crash.  I was driving the car the other day to pick up my husband from work and  my body began to crash and my eyelids became heavy so I closed my eyes.  I  had to keep telling my brain that I was driving a car in traffic.  It scares me the things that I have no control over anymore.  I saw my rheumatologist and pain specialist this week.   My Rheumatologist is super nice but I wanted to hurt him for touching all my joints and causing me more pain,  the next day I felt as if I was hit by a mack truck.  He talked about my blood work and how it looks like on top of everything. I have either Lupus Nephrites with symptoms of Either R.A  (Rheumatoid Arthritis), Fibromyalgia....