My Not So Normal Life and A Few Other Things.

Why ?   That is always on my mind . This is the hardest question to answer but I will try my best. A Normal day for someone with Lupus  (My Story) Wake up is normally very hard for me in the morning, no matter what time . Being nauseous, In pain,I deal with  my body being super stiff and sore usually at this point I am waking up from only  a few hours of sleep. I hurt more at night and Its hard for me to sleep. I am usually fighting the pain till 3 am( if I am lucky) most of the time it's 5 a.m and i just end up staying awake to get my kids off to school. Why does it hurt so much more at night? I am no longer able to sleep without medication . Eating Food Sucks i have sores inside my mouth and on my gums which make eating hard. I try to drink water and eat something so that I can take my Medications  (which now is up to 8 pills ) After I take my medication I am sick to my stomach  sometimes I lay back down till i  feel a bit better. That is difficult because most of t

                                                (Pic found on Pinterest) Isn't this gorgeous? I would love to decorate my front porch this way. But I would have to have a front porch first, living in a town home takes that away .  Fall is just right around the corner and I couldn't be more excited. This is the one season that I can actually be outside more.  The weather is almost perfect for me and I don't have to worry about the hot summer sun blasting down and making me sick or getting a butterfly rash .  It's not cold enough to freeze me to death.  That is my burden with this Lupus Disease.  It's just a no win with me. I am either too hot and sick  or too cold and stiff  to where my body will shut down .   I enjoy watching the leaves change colors, the fashion that is boots,hoodies, Sweaters. But most of all the Smells of everything pumpkin comes out. The smells of  cinnamon and brown sugar just  fall smells tend to make me smile. This made me lau