My Not So Normal Life and A Few Other Things.

Found this today and thought how appropriate .This explains a lot of how I feel daily. Yesterday I was able to work with my husband filing,lifting,standing and felt good .Today I am in bed and can't even keep my eyes open and the pain is intense . It's definitely a rest day . Hopefully this explains a bit more about this disease . Hugs. Misty 💋 Sometimes you just want someone to understand what you are feeling and just be there for you, without offering suggestions or judging you. Yes, sometimes when I say “I’m okay”, I want someone to look into my eyes and see the truth. May be hug me tight and say, “I know you are not”. I sometimes want to know that someone cares enough to see the truth that I am trying so hard to hide… But if you don’t look deep, you may not see, because I have hidden it deep and it is not for everyone to see. “Oh! You don’t look sick!” Yes, these words can leave you feeling irritated and sometimes it upsets you. Some people by their insensi

Where to start. I am not a writer and not an expert on Blogging so please be kind ... These are my words and my experiences. What is Lupus? Wikipedia describes it as- Systemic lupus erythematosus, often abbreviated as SLE or lupus, is a systemic autoimmune disease in which the body’s immune system mistakenly attacks healthy tissue. There are many kinds of lupus. The most common type is systemic lupus erythematosus, which affects many internal organs in the body. SLE most often harms the heart, joints, skin, lungs, blood vessels, liver, kidneys, and nervous system. The course of the disease is unpredictable, with periods of illness alternating with remissions. I describe it as- What the Heck happened to my Life? Why am I always in hellish pain? Why do I feel sick all the time disease, Instead of being able to do normal things I am stuck to the How do I feel today and the can I do that won’t need three or more days of recovery time?  My life is now dependent on how I feel e