My Not So Normal Life and A Few Other Things.

                         What’s HOT for spring? Can I just say that I am loving what I see, both high end and drugstore products                                                                           My eyes say yes ,but my wallet says NO.             If you have been reading my blog you will know I have SLE Lupus with that said I do have constant Dr. visits  a lot of co-pays and   my medicine is not cheap  by any means                            (I have 8 Different prescriptions to fill monthly which adds up to a lot of  $$$ spent . So  I am not able to go crazy and buy all the makeup I see.  I d...

Well I went to my Dr's. On Friday to refill my medications and talk to him about my pain. And let's just say it wasn't what I wanted to hear .  My lupus has gotten worse and  he has diagnosed me as disabled  I can't walk or move everything is swollen,  my  lower right flank is  sending a shooting pain up my back that knocks me on my butt and  sometimes it is on both sides . I can't walk normal anymore, the zombie walk is my normal most days  (someday's  there are days i can move slowly but look sorta normal . )   My Muscles are non existent at times and by this I mean  I can't hold a fork , get dressed, tie my shoes , or go to the bathroom by myself . I need help to walk.  This is something that has been going on regularly  for about a few months . This could be caused by  numerous things It could be my kidneys for the side pain or from laying on that side when sleeping , degeneration in  my body due to...

Hello my name is Misty. I am a 40 yr. old woman and I Have SLE /DiscoidLupus and it really,really sucks.  Just when I start feeling better the world hits me head on and hard and once again I am down. I can handle the hellish pain I feel every day  (to a point )  then all I want to do is cry.  But I can't   because  it takes all of my energy.  Just like showering,walking, moving    getting dressed, breathing , cleaning etc.   You get the Idea. I am tired of being tired, exhausted and fatigued and sick all the time . All of which is different things in different ways.  I hate that this disease has taken over my life and I am controlled by it.   I am on an emotional roller coaster every  day.  I am so mad that I can't do normal things anymore without paying the price days later or the fact that    pretty much anything has been a task without being tired or having to rest after....