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Lupus thoughts and ramblings




Such hurtful words are being said to the chronic illness family.

 First off it's not in our heads it's real. I couldn't make this stuff up or would Want to!
Second* Just because we are sick doesn't mean we are Dead.  
With that being said.  It just means we are way more sensitive to the things you say to us or your actions show. We Already feel Worthless, Useless, and a Huge Burden on everyone anyway. 
 Just know we don't want to feel like this but have "NO choice" in the matter. 
People can say things not meaning to buy it comes across different to us.. I have heard of even the strongest marriages collapse because of communication it's either too much or lack of..  (I also know each side have a story to tell) 
But please  Remember we are still breathing ,we want to fight but sometimes are bodies won't let us.... we want to be included, even if we can't go. Just the courtesy of asking is enough for us to feel normal because we turned it down our selves.  Ya know? 
We want to feel loved and that we do matter,  We also want you to realize we may do things different now, so be a bit more patient with us.  We may say we want to die but TBH that's are way of saying my pain tolerance is at its highest I just want it to end. 
So many people choose to end it all. 
I can see and understand why now. 
But just hold on...Another day is in sight and you will conquer that one too. 
As I am laying in bed crying because of pain,  sadness and heartbreaks over the Why's of this disease. 
Just love us, know we want to be out doing things, we are a bit of a mess (LUPUS Fog is really real... ) We know it's not just us it's everyone we love going through the same stuff just a bit different them us.. Anywho this is where I say Goodbye or I will ramble on. 
Thanks for talking the time to read. 
 As Always Stay Strong & Keep On                                       Fighting,
                           XOXO
                            Misty



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