Skip to main content

Lupus thoughts and ramblings




Such hurtful words are being said to the chronic illness family.

 First off it's not in our heads it's real. I couldn't make this stuff up or would Want to!
Second* Just because we are sick doesn't mean we are Dead.  
With that being said.  It just means we are way more sensitive to the things you say to us or your actions show. We Already feel Worthless, Useless, and a Huge Burden on everyone anyway. 
 Just know we don't want to feel like this but have "NO choice" in the matter. 
People can say things not meaning to buy it comes across different to us.. I have heard of even the strongest marriages collapse because of communication it's either too much or lack of..  (I also know each side have a story to tell) 
But please  Remember we are still breathing ,we want to fight but sometimes are bodies won't let us.... we want to be included, even if we can't go. Just the courtesy of asking is enough for us to feel normal because we turned it down our selves.  Ya know? 
We want to feel loved and that we do matter,  We also want you to realize we may do things different now, so be a bit more patient with us.  We may say we want to die but TBH that's are way of saying my pain tolerance is at its highest I just want it to end. 
So many people choose to end it all. 
I can see and understand why now. 
But just hold on...Another day is in sight and you will conquer that one too. 
As I am laying in bed crying because of pain,  sadness and heartbreaks over the Why's of this disease. 
Just love us, know we want to be out doing things, we are a bit of a mess (LUPUS Fog is really real... ) We know it's not just us it's everyone we love going through the same stuff just a bit different them us.. Anywho this is where I say Goodbye or I will ramble on. 
Thanks for talking the time to read. 
 As Always Stay Strong & Keep On                                       Fighting,
                           XOXO
                            Misty



Comments

Post a Comment

Popular posts from this blog

Life 2020-2021 Getting back into this.

  So as the whole world has struggled with the pandemic it's an understatement as to how I have been, my kids and, my husband. I am not going to lie and say that it didn't affect me in an immense way  I went down a severe hole into depression and, let's just say my mental health was a nightmare  I wanted to die and, just didn't have the strength to do it myself so I would lay in bed and, starve myself hoping I wouldn't wake up the next time. The real struggle came at night because of my insomnia I would lay in my bed and, think about all the things I couldn't do or wanted but, I just didn't have the strength to, I would think about how much better my husband would have been marrying someone else how I have ruined his life how mean I was to him and didn't even think or want to be. How he is carrying on with his life and me, I'm just better off dead because that is exactly how I feel like a person suffering from all this crap.  My kids don't seem t...
Post a Comment
Read more

Octobers ipsy treats and no tricks review

Here is my review on the bag for the month of October  *the bag is an adorable red clutch with an embossed masquerade mask.  The theme for the month is  "Who said nights were for sleep" #ipsyafterdark  We hope this bag inspires endless after-dark adventures.                                Stay wild, moon child.  I have decided to start with Jayedyn's first this time.  1 st product is intensively precise eyeliner  from the brand Aurora the shade is a rich brown shade. This is a felt tip liquid liner you can glide this on to make the perfect cat eye.   Removes easily without tugging on those precious lids.    2 nd product is a sample of the highly coveted shape tape contour concealer. This is a full coverage product it brightens under eyes. It’s a m...
Post a Comment
Read more

But you Don't look sick!!!!!

Chronic Illness can play a tricky part in life. One day you are feeling like you can conquer getting out of bed and moving to the couch and the next you can’t even move to go to the bathroom.  The stereotype behind them is also very hurtful and frustrating to say the least . The saying I hear a lot is. “What  you have Lupus, But you look great and not sick at all. “ Your makeup is on and your hair is done You look Normal! This drives me crazy,  I was talking with a friend who suffers as well  we were discussing this disease and how it would affect the world if you could see the insides of our bodies on the outside.  Would anyone look at us?  Or would they be able to look away once they did?  If the pain we felt was colored so that you could see it.  How would we look to the outside world? Would they say that we looked Normal Then?  How the world treats Invisible Illnesses has got to stop. It’s hard enough to deal ...
Post a Comment
Read more