My Not So Normal Life and A Few Other Things.

Why ?   That is always on my mind . This is the hardest question to answer but I will try my best. A Normal day for someone with Lupus  (My Story) Wake up is normally very hard for me in the morning, no matter what time . Being nauseous, In pain,I deal with  my body being super stiff and sore usually at this point I am waking up from only  a few hours of sleep. I hurt more at night and Its hard for me to sleep. I am usually fighting the pain till 3 am( if I am lucky) most of the time it's 5 a.m and i just end up staying awake to get my kids off to school. Why does it hurt so much more at night? I am no longer able to sleep without medication . Eating Food Sucks i have sores inside my mouth and on my gums which make eating hard. I try to drink water and eat something so that I can take my Medications  (which now is up to 8 pills ) After I take my medication I am sick to my stomach  sometimes I lay back down till i  feel a bit bet...

                                                (Pic found on Pinterest) Isn't this gorgeous? I would love to decorate my front porch this way. But I would have to have a front porch first, living in a town home takes that away .  Fall is just right around the corner and I couldn't be more excited. This is the one season that I can actually be outside more.  The weather is almost perfect for me and I don't have to worry about the hot summer sun blasting down and making me sick or getting a butterfly rash .  It's not cold enough to freeze me to death.  That is my burden with this Lupus Disease.  It's just a no win with me. I am either too hot and sick  or too cold and stiff  to where my body will shut down .   I enjoy watching the leaves change colors, the fashion that is boots,hoodies, Sweaters. But most of all...