Today is a good Lupus Day , I know right . Knock on wood that it stays that way at least for a couple of hours.
No rash, my face is clear , Minimal Pain that i can handle , a Bit of energy, just enough to clean up and do a few loads of laundry. Got dressed and pulled my hair up in a bun.
But I haven't done makeup yet . Not gonna push it .
I wanted to jump on here and post a few thoughts
So Saturday on the Lifetime channel it was the world premiere of Toni Braxton's Unbreak my heart movie.
If you missed it you will have to catch it on a rerun. It's amazing .
http://www.mylifetime.com/movies/toni-braxton-unbreak-my-heart
I have always loved Toni Braxton's music but to watch her story and what she went through made me love her more.
I think she is a courageous woman for letting the world know that she too is a Lupus warrior .
At first when she was diagnosed she wanted to keep it quiet which i am sure we all have done at one time . Me included.
I thought if no one knew the struggle i fought that it was for the best . But my husband encouraged me to let the world know . I did to an extent , I had some good things happen and some not so good things . I do know that i lost a supervisor position because i was brutally honest with my diagnoses .
But i know that i was honest to myself and know that they lost an amazing supervisor . There loss right?
I am so happy that in the movie it showed the real symptoms like the chronic fatigue, pain, doubt and personal suffering we all do quietly everyday. Although when i am having a flare up day and in bed I wear sweats and a sweater and my hair is all over the place Not gorgeous Night gowns like Toni Has .
I may need to look into that .. Victoria secrets here I come LOL.
I hope that the world can see now what we suffer with is real and just because we don't look sick on the outside that we are fighting the hardest battle on the inside . Maybe not be quick to Judge or say something to someone when we don't know what they are dealing with
Maybe it's a good thing that celebrities are being Honest Maybe we can push for more awareness.
I will take it wherever . It's nice to know That we are all alike when things like this happen.
It also showed that even though this disease is life long and there isn't a cure that we can still try to be what we want to be Just in a different way .
I look up to her as a woman, mother and Diva ! And if I can help just one person know that it's okay to show the ugly side of this disease I will have accomplished my goal.
I am very lucky to have my support system in tow and always positive with me even when i am at my lowest . We now can laugh about the symptoms i have and i am okay with it .
Like my rash , It's who have i fought today ? Or did i win the football game ? Did I win or Godzilla ? etc.
The days it's hard for me to walk As a family we all walk like Zombies (Sound effects included) and endure the looks with laughter. Oh and i forgot the makeup days when everyone helps me with makeup to cover up my rash . Wow Let's just say I am not going to win any Beauty competitions .. But I am okay with it because my family is always by my side to help or just be there .
I am feeling blessed at this time in my life. Or TBH today.
I know that god wouldn't give me anything more than what i can handle.
But when i meet the man we are gonna have a few words about some days and pain i had . You can count on that .
I am also very blessed with the friends i have the ones who understand how hard this is for me and continue to help me fight each day .
I had a dear friends baby shower to attend this weekend and had to go get a gift and travel an hour away to attend and it was also a horrible pain and rash day . I had to push myself harder then I have ever had But when she saw me she gave me the biggest hug so much that i felt like i was gonna be bruised all over . LOL She knew how hard it was going to be for me to attend and with that if i wasn't able to make it she would understand too.
I was able to ride along with another amazing friend who was okay with me talking about the good and the bad things lately. I love that i can be brutally honest about everything and my feelings .I hate to feel like all I talk about is Lupus But it's a huge part of me and I can't pretend it's not there . Like right now I am starting to get tired ..
I just want you to all know it's okay to be honest and yes this disease sucks and that we all need someone to talk to about the good and bad parts.
If you don't have people like this in your life you need to get rid of the bad and find ya some new ones . I can even be there for ya if you need That Is a Promise .
I think that's all for now I love everyone who is reading my Blog
As Always
Stay Strong And Keep Fighting ,
#DontHideEmbraceIt
Love ya ,
Misty
No rash, my face is clear , Minimal Pain that i can handle , a Bit of energy, just enough to clean up and do a few loads of laundry. Got dressed and pulled my hair up in a bun.
But I haven't done makeup yet . Not gonna push it .
I wanted to jump on here and post a few thoughts
So Saturday on the Lifetime channel it was the world premiere of Toni Braxton's Unbreak my heart movie.
If you missed it you will have to catch it on a rerun. It's amazing .
http://www.mylifetime.com/movies/toni-braxton-unbreak-my-heart
I have always loved Toni Braxton's music but to watch her story and what she went through made me love her more.
I think she is a courageous woman for letting the world know that she too is a Lupus warrior .
At first when she was diagnosed she wanted to keep it quiet which i am sure we all have done at one time . Me included.
I thought if no one knew the struggle i fought that it was for the best . But my husband encouraged me to let the world know . I did to an extent , I had some good things happen and some not so good things . I do know that i lost a supervisor position because i was brutally honest with my diagnoses .
I am so happy that in the movie it showed the real symptoms like the chronic fatigue, pain, doubt and personal suffering we all do quietly everyday. Although when i am having a flare up day and in bed I wear sweats and a sweater and my hair is all over the place Not gorgeous Night gowns like Toni Has .
I may need to look into that .. Victoria secrets here I come LOL.
I hope that the world can see now what we suffer with is real and just because we don't look sick on the outside that we are fighting the hardest battle on the inside . Maybe not be quick to Judge or say something to someone when we don't know what they are dealing with
Maybe it's a good thing that celebrities are being Honest Maybe we can push for more awareness.
I will take it wherever . It's nice to know That we are all alike when things like this happen.
It also showed that even though this disease is life long and there isn't a cure that we can still try to be what we want to be Just in a different way .
I look up to her as a woman, mother and Diva ! And if I can help just one person know that it's okay to show the ugly side of this disease I will have accomplished my goal.
I am very lucky to have my support system in tow and always positive with me even when i am at my lowest . We now can laugh about the symptoms i have and i am okay with it .
Like my rash , It's who have i fought today ? Or did i win the football game ? Did I win or Godzilla ? etc.
This is my Crazy Family My Husband Lonnie, 16 yr old son Logan
12 yr old Camden (since birth he always has his tongue out .) Then My beautiful daughter 14 yr old Jayedyn , My oldest son 18 yr old Khrystian and then Mayson My 10 yr old
I am feeling blessed at this time in my life. Or TBH today.
I know that god wouldn't give me anything more than what i can handle.
But when i meet the man we are gonna have a few words about some days and pain i had . You can count on that .
I am also very blessed with the friends i have the ones who understand how hard this is for me and continue to help me fight each day .
I had a dear friends baby shower to attend this weekend and had to go get a gift and travel an hour away to attend and it was also a horrible pain and rash day . I had to push myself harder then I have ever had But when she saw me she gave me the biggest hug so much that i felt like i was gonna be bruised all over . LOL She knew how hard it was going to be for me to attend and with that if i wasn't able to make it she would understand too.
I was able to ride along with another amazing friend who was okay with me talking about the good and the bad things lately. I love that i can be brutally honest about everything and my feelings .I hate to feel like all I talk about is Lupus But it's a huge part of me and I can't pretend it's not there . Like right now I am starting to get tired ..
I just want you to all know it's okay to be honest and yes this disease sucks and that we all need someone to talk to about the good and bad parts.
I think that's all for now I love everyone who is reading my Blog
As Always
Stay Strong And Keep Fighting ,
#DontHideEmbraceIt
Love ya ,
Misty
Comments